For over 17 years, SNUG has brought together families raising children with rare health conditions.
Run by the Family Action Network (Centre) at the University of Newcastle, SNUG holds residential retreats where families can spend time together connecting as a family, take part in fun and accessible activities, and meet others who share similar experiences. It is often the only chance these families have to take a break from the daily challenges and meet others like themselves.
Through the generous sponsorship of organisations such as The Steve Waugh Foundation, the Woodend Foundation, a SARC Inclusive Communities Grant (Department of Social Services), the Williams Syndrome Foundation, and Bishop Tyrell College, the SNUG program has been able to support 500 families and over 1,800 individuals since 2009.
We are so proud of the community we’ve created and hope to find further sponsorship so this important program can continue.
SNUG Retreats
SNUG retreats provide families caring for a child with a rare medical condition a safe and supportive space to connect as a family, and to connect with other families in similar situations. Through this, we aim to improve family and community wellbeing, connection, communication, and resilience.
SNUG Mentoring
The SNUG Mentoring project empowers young adults (aged 15-25) with rare conditions to recognise and utilise their skills, strengths and knowledge by making a valued contribution to the rare disease community.
SNUG at Home
The SNUG at Home project was a pilot program designed to help families living with a child with rare disease to stay connected with each other as a family, and to continue to connect with other families online in a safe space, following their SNUG retreat.
See more on our Instagram
